What’s Wrong With Junior?

From the wife today:

This is a long post—I am hesitant to write it because we have so many friends who are trying to have/expecting babies. I don’t want to scare anyone into thinking that parenthood is dreadful. So I will say that what we are going through, although not terribly uncommon, is not normal. My sister and brother both have babies who are happy and rarely fussy and sleep for hours at a time.

I didn’t have many expectations for motherhood but the one that I did have was that I would breastfeed for as long as possible (hoping to meet that 1 year mark). John and I attended the nursing 101 class and had many discussions about how he could encourage me to keep nursing even when I started to think I didn’t want to anymore. I think that we thought the hardest thing about nursing would be the “inconvenience” of it. Wrong.

First, for some reason, I developed a strange side effect of nursing: I grew increasingly nauseous every time Junior ate. I’m talking first trimester, I-might-puke-all-over-this-kid sick. That lasted about 2 weeks and then it died off. On top of that, Junior would only latch every once in awhile. We had to give him bottles half the time because he simply wouldn’t latch. Finally, early last week, we had a good rhythm: he finally started latching but he would nurse for a full hour and then would want to eat again in an hour or less. Then he began to scream bloody murder after every nursing session. A lactation specialist told me that he was just frustrated because bottles are so much faster and he was frustrated that he couldn’t get that same fast feeding from me. Of course, I thought this was ridiculous because if that were the case, wouldn’t he scream at the beginning of the feeding? After a few days of this, we started giving him a bottle when he would start crying. Luckily, I had a bit of a supply built up of pumped milk so we were good to go. Except for the fact that the kiddo usually drank 3 oz even AFTER a 60 minute feeding. We decided that something must be wrong with my supply. I went back to the lactation consultant and we found out that Junior was only getting 1 oz from me. Considering that he could down a 4 oz bottle with no problems, we were beginning to get concerned that my milk supply was low. After comparing what I was pumping to what is normal, I realized that I have a horribly low supply. Enter fenugreek and pancake smell. Unfortunately, although I did begin smelling like maple syrup, my supply remained the same. I can’t tell you how sad this all made me—I had convinced myself that I would nurse for a year and now I couldn’t even provide my son with 1/4 of what he needed at each feeding. We decided that I would stop nursing and only pump—we’d give Junior my milk from bottles during the day and formula at night (we just didn’t have enough of my milk to go without formula). It was simply too hard to nurse for 60 minutes, give a bottle, settle Junior down, and then pump to get any excess that Junior had missed (and to get a supply up for the bottles we now had to feed him). By the time all that was over, I only had about 45 minutes before Junior was ready to eat again. I was going crazy. I should say that I think it’s a shame that people make women feel so guilty about their decisions regarding nursing. There are people that are so pro-breastmilk that they forget that there is a human behind those boobs who needs sleep and sanity. I was not going to be a good mom to Junior if I kept that up. But everything I read and almost every “professional” I talked to made me feel like I was selfish if I stopped nursing, even though I couldn’t satiate Junior if I continued. Anyway, we made our decision and that first day was great! I gave Junior bottles when he got hungry and then pumped right away. He was way more chill because he didn’t spend all that time screaming out of frustration that he wasn’t getting enough food. John and I thought we’d turned a corner and that we would FINALLY have a happy baby. Unfortunately, we were wrong.

The last week or so, Junior has started to get hysterical after every feeding—even from the bottle (which he normally loves). It got worse and worse to the point that he would scream bloody murder during a feeding and for about an hour afterward. He was/is absolutely inconsolable. He is so hungry but he will take a few sips and then scream and scream and scream. So he wasn’t eating as much but then he’d wake up an hour later starving. And we’d go through it again. We finally got in to see the pediatrician and found out the news: our sweet little boy has both acid reflux and a milk protein allergy. Basically, he has such bad acid that his throat is totally raw. So every time he eats, it upsets that already irritated esophagus and he screams out of pain. But, of course, he’s still hungry so he has to basically suck it up and eat anyway—despite the fact that he is in agony. So when I thought that he was mad at not getting enough milk from me, he was actually in pain because his stomach had begun sending up all that acid to his esophagus. So low milk supply + acid reflux = super unhappy Junior.

It is, by far, the hardest thing I’ve ever had to deal with. It is impossible to watch him in such pain. He screams to the point where no noise comes out—one of those horrible, guttural cries. Add to that the fact that there is NOTHING we can do to calm him down or make him feel better. Mix in the lack of sleep because he truly won’t doze for long enough for us to fall asleep too. We usually get an hour of sleep and then he’s up for an hour and a half screaming. Rinse and repeat. It’s horrible. But at least now we have a diagnosis. The pediatrician prescribed Zantac—it’s weird and sad giving my one month old prescription medication but we are praying that it will work. We also switched to a special (and freaking expensive!) formula that is supposed to neutralize acid in his stomach so it won’t come up to his throat. Finally, I have to cut out all milk and milk proteins from my diet so that it doesn’t pass to my milk (and thus to Junior). I didn’t think it would be that hard because it’s easy to avoid cheese, yogurt, etc. But I was wrong: milk proteins are in everything! Even the stuff where milk is removed still has the proteins left. We are so praying that this will all heal our little boy. The doctor said not to expect him to be better for about two weeks (TWO WEEKS?!?!?!) and we are sincerely asking for you to pray that it works. Today was his first full day on all the medicine, formula, etc. and there wasn’t much improvement. He went three feedings without screaming but then freaked out again (I am writing this post in the middle of the night after one of his scream fests). I really cannot tell you how much we’d appreciate your prayers. Thanks everyone!

3 comments:

Our babies have has similar instances of Acid Reflux/GERD et al. We've used Zantac AND Reglan. I think Zantac is the nasty smelly one and Reglan smells like birthday cake.

It's going to be tough. The milk does soothe it eventually. And more than likely he'll grow out of it. Once my kids got on solid foods, around 6-9 months the GERD and reflux was gone.

But our carpet in the living room looks like a map of Indonesia from all the spit up stains.

We will be praying for you guys.

April 7, 2010 at 6:43 AM  
Pippy said...

I will be praying for you guys! I hope that everything starts to get a little easier for all 3 of you!

April 7, 2010 at 11:17 AM  
Anonymous said...

Hi my name is Tracy and I am a friend of Tina's. I some how found your blog from a facebook things she friended. Anyways my youngest is a reflux baby, although it sounds like you have lots of other issues to deal with as well. One thing the pediatrician didn't tell us was that it can take two weeks for the zantac to take full affect. Also, zantac didn't work for us and we switched to axcid (bubblegum flavor instead of nasty mint). During that 2 to 3 week period for breakthrough pain we could give her otc mylanta (cherry for adults)up to 4 times a day (1 cc, I think). It also has a gas relief in it that worked wonders. My baby is now 15 months and still takes the axcid once a day before bed otherwise she wakes up cranky. I hope it evens out for you. I remember those endless screaming days. Also, carrying them in a Moby wrap helps to keep them upright while they sleep and the acid down. She was attached to someone for a long time and even now when she sees the wrap she gets excited. Tracy

April 14, 2010 at 6:29 PM